About Me

When I was a child, someone asked me, “What do you want to do when you grow up?” I immediately responded, “I want to save the world.” I couldn’t understand why the adults around me were laughing, I was completely serious!

 

From birth to age 22, I didn’t know a day without pain. My stomach hurt all the time. It felt as though someone was squeezing my intestines, and I had severe chronic diarrhea. My muscles always ached, my eyes and throat were dry, my nose was so stuffed up, I had to breathe through my mouth all the time. I also struggled to learn and suffered extreme emotional distress.

 

In 2002, I went to see a naturopathic physician, and he took one look at me and said, “Food is killing you.”

 

Long story short, I was diagnosed with gluten intolerance and ITP (an autoimmune blood disorder) in 2002. I got into a car accident in 2004 and ended up with a herniated disk in my neck, and I lived with chronic, intermittent pain for many years (still do, only it’s not as bad now). In 2014, I was diagnosed with autism (Asperger’s), TBI (traumatic brain injury), PTSD, and OCD.

 

No, you would never know any of it to look at me. Yes, I am one of the millions of people living with invisible illness.

 

That’s why I created this website. In 2010, (way before my cognitive diagnoses), I thought about just how long it had taken me to get my physical diagnoses and how nobody believed me. Nobody. I thought about how many hours I spent researching and figuring out how to eat without making myself sick.

 

Then, it hit me: “I told you I was sick!”

 

It was originally going to be the title of a book, but when the idea of a website came to me, I couldn’t let it go. It became my all-encompassing, all-consuming obsession. Since I started this blog, I’ve been reaching out to others with mystery symptoms, chronic illness, and invisible illness.

 

I’m here because you’re important to me. Yes, you. The person reading this right now! I know exactly what it’s like to not only have no support, but to also be told over and over again that you’re making up your symptoms for attention.

 

It’s infuriating. It’s terrifying. It’s isolating. It’s wrong.

 

If it’s happening to you, I understand. This blog is meant to inform and validate you.

 

If you’re new, here are some articles to start with:

What to Do When Your Doctor Doesn’t Believe You

Are You Allergic to Your Home?

What Causes Mysterious Bruising?

If you’re looking for support, please join the Facebook support group.

Main Facebook Page

Twitter

Pinterest

Instagram (More a personal page, but feel free.) 

 

 

 

 

 

 

20 comment(s) on “About Me

  • HI Jaime! Your blog is wonderful. Sooooooo many people try to tell me that my sinus infection is “just a common cold”. HA! It is gratifying when those same people sometimes call to report–and apologize. They’ve had a sinus infection and now see the big difference. However, that rarely happens. Most people think I’m a suck who can’t hack a common cold. 🙂 It’s nice to meet someone who knows how I feel, Jaime 🙂
    Please check out my blog, at http://www.sinussister.com
    Feel better!
    Joanne

  • I would like to add another food to the list of possible allerges. Corn. It has become a 4 letter word in our house. Son was tested positive for corn allergy. Within days of eliminating the best we could from his diet, his facial tic stopped, he was more focused and looked at us with clear eyes. Since corn is in almost everything processed and is used as a derivative for items you would not associate to corn, it has been a life altering event in our lives. We are still working on behavioral problems and are going to try to elimination diet recommended by you to see if we have more foods affecting his behavior. Thank you.

  • Yes, corn can have neurological side-effects. It makes me feel inflamed if I eat too much of it. Glad you found out the cause. Best of luck to you and your son!

  • Hello!

    My name is Nerissa and I recently published a comedic satire about digestive disorders titled “Henrietta James BOOK ONE Not Everyone Poops.”

    I wrote this novel to create an open dialogue about digestive disorders, especially with women and young females. For years it has been the dirty secret; closed door or quiet conversations in the corner about gas, bloating, strange poops, no poop, too much poop or worse vomiting.

    Having Irritable Bowel Syndrome with Constipation and a strong Gluten Intolerance myself for the last 16 years has given me a plethora of digestive and medical information, painful and outlandish stories, and enough angst to fill mountains of empty pages.

    Would you be interested in reviewing the book for the book for your website? I would be happy to send you a free copy.

    I appreciate your time!

    Nerissa N. Nordquist

  • Hello Nerissa,

    Your book sounds funny. Do send a copy and I’ll do my best to find time to review it: jaimeheidel@yahoo.com.

    Thank you for your comment.

    Jaime

  • Brilliant site. Thank you for all of the info. I haven’t seen anywhere else on the web where mystery symptoms are rooted out and explained so clearly.

  • Thank you, Kim. I appreciate that.

  • Hello Jamie,
    WOW! I am so glad you found out why you were sick. So many do not understand why and their Drs. either do NOT know what IS wrong or Big Pharma prevents the denial to continue.

    Either way,so nice to meet you and enjoy Kefir(pronounced /kəˈfɪər/ kə-FEER)

    Here are a few sites I would like you to research when you have a free moment.

    Love & Light,
    Koowah Shining (Little Moon’s Nana)
    ~~~~~
    COMMON METHOD for MAKING MILK-KEFIR- http://users.chariot.net.au/~dna/Makekefir.html#usual_method_for_kefir ***Fair Use***

    Kefir Milk Benefits- http://kefirbenefits.org/kefir-milk-benefits/ ***Fair Use***

    Mysterious Magic Milk- http://www.alsearsmd.com/mysteriousmagic-milk/ ***Fair Use***

    Exodus Chapter 16

  • Thank you so much. I haven’t tried it yet but I’m excited to. I just watched this video on making kefir: http://www.youtube.com/watch?v=g8inJzX-6yE I’m a very visual person so that helped. lol! Thank you again. This will really help a lot!

  • Hi Jamie,

    I read your blog about vaginal pain.Am facing same problem for almost one year.Medicines are not making much of difference.

    Do you suggest , switching to Homeopathic treatment would help me.

  • Hello Anjali,

    I’m sorry you’re going through this. I’d recommend reading this and getting in contact with the author. He’s a very good homeopath: http://itoldyouiwassick.info/2012/08/14/beyond-natural-health-author-varun-gupta-discusses-the-miracle-of-homeopathy/

    I wish you the best. I know how frustrating it can be.

    Jaime

  • Hi, Jamie!

    There is so much at your blog here. I wonder if you could point me in the right direction? I think I have that canida thing, but I don’t know. I’m a man with swollen lymph node (groin), chronic exhaustion, vitamin d deficiency, weight gain, swollen feet, yeast infection on tongues. My physician said she thought I would have cancer, except that I’m gaining weight instead of losing weight. Plus I have no insurance, so medical treatment is costly. And I’m beginning to wonder about medical science.

    Thank you so very much!

    John

  • Hi John,

    I’m sure this is really rough for you and I’m sorry you’re going through it. It sounds like it’s possible you have chronic candida or at least a candida infection that won’t go away. Did your doctor suggest you add a vitamin D supplement to your diet? I’m vitamin D deficient myself and I take it daily. Most naturopathic doctors recommend anywhere from 2,000 i.u. to 5,000 i.u. daily for people with severe deficiency. Still, it’s best to get your blood levels checked before adding the supplement so as not to overdose. Plus, even if you are light-skinned, you can still take about 15 minutes of direct sunlight each day to get some natural vitamin D.

    Also, do you have digestive issues? With the symptoms you mentioned, it sounds like you could benefit from a good quality probiotic supplement as well. Those are the live, active cultures found in yogurt. You could also try making your own milk kefir at home but you’d have to either buy the grains or get them from somebody who already has them. Milk kefir is an excellent source of probiotic. I’ve been using it for 2 weeks now and I can’t believe the difference in my digestive health.

    I had a doctor believe I had cancer once because of my unusual blood counts. Turns out, it was gluten intolerance that was causing it. I would recommend trying to save money and make an appointment with a naturopathic doctor in your area if you’re able to do that. Also, look to your diet. That’s very important. If you’re eating lots of fast food and processed food, that will cause these types of symptoms as well because you’re not giving your body optimum nutrition.

    I wish you the best, John. Keep in touch.

    Jaime

  • Is it possible to subscribe to your posts via email?

  • Hi Cristie,

    I’m working on setting something like that up now. Thank you for your comment!

    Jaime

  • Hi Jaime,

    On days like the one I’m having today, it’s good to find sites like yours. Once again I’ve been tired for no reason and have felt incredibly frustrated with myself tonight. I found your site after googling digestive aids reviews. I reckon that’s what I need, as I’ve felt tired for years! I’ve already found out I have an intolerance to wheat, eggs, diary…and some minor intolerances to other things, as well as some deficiencies, but it has seemed no matter how well I’ve eaten or exercised, so far it’s made no difference to my energy levels. Not to mention no vitamins have ever been absorbed into my body. I’ve also suffered with anxiety since I was 9, and on/off issues with depression, and the fore mentioned ongoing fatigue, that I can’t work full time ever!

    I only hope to be able to cure myself soon! By introducing and trialling various digestive aids.

    Writing from down under Oz.

    Izabela

  • Hello Izabela,

    Thank you for your comment on my blog. I wish you the best of luck in your journey. Try to find a naturopathic physician in your area who can give you a complete health work-up. Digestive aids should help but it’s important to really get to the bottom of your fatigue before self-treating. I think you’re on the right path, though. Especially check for thyroid issues if you haven’t already. Gluten intolerance can cause thyroid disease.

    Best of luck to you!

    Jaime

  • Hi Jamie!

    I am able to relate with you so much. I have been diagnosed with Celiac Disease, gut dysbiosis and leaky gut. I have a tough time finding support from loved ones or even a simple understanding of what I am going through. I love the title of your blog! It made me laugh because yyou took the words right out of my mouth! I will be following you 🙂

    XOXOX Fallon

  • Thank you! 🙂

  • Hello,

    My name is Alec and I am the Affiliate Manager at seeking Health, I contacted you a few days ago but I haven’t heard back from you yet.

    I was very fascinated by your website itoldyouiwassick.info and I feel that it caters to the traffic that is also immediately relevant to what we offer, I was wondering if you would be willing to advertise our products in your site. A partnership between us, where you would be earning commissions ranging from 12-30% from sales made through your website.

    If this is something that may interest you, please contact me through this email address alec@seekinghealth.com or visit our Affiliate program landing page http://www.seekinghealth.com/affiliate_program/affiliate.html to learn more about our Affiliate program.

    Best Regards,
    Alec/Affiliate program Manager,
    http://www.seekinghealth.com

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