Also, if you're a spoonie, and you've had these thoughts, you're not alone, you're not a bad person, and it's OK to feel this way.
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Autoimmune Disease

Bullied By Your Doctor or Other Medical Staff? Share Your Story Anonymously!

By | Autoimmune Disease, Chronic Pain | No Comments
Have you ever been bullied by your doctor? Have you been treated like a drug-seeking hypochondriac by medical staff? You’re not alone. Hundreds of thousands of chronic pain patients (especially women) are bullied, dismissed, mistreated, and blacklisted by doctors, nurses, and even medical receptionists who are supposed to be there to take care of them during their time of need.

 

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How One Blogger Achieves Ulcerative Colitis Remission With Complementary Medicine (Interview With Laura Scaviola of Mangia Paleo)

By | Autoimmune Disease, Chronic Pain, Digestive Health, Interviews | No Comments
1. When were you diagnosed with inflammatory bowel disease? What kind of IBD do you live with?

I was diagnosed with ulcerative colitis in March 2013 at age 25.

2. What are some conventional methods you've used or tried to treat your IBD?
As soon as I was diagnosed, I took oral meds (mesalamine) and steroids but flared again after a year. I then switched to other oral meds before flaring again and trying a biologic infusion and immunosuppressant. After still not achieving long-term remission, I started a different biologic and here we are! Fingers crossed this one works for many years!

 

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The Top 4 Benefits of Gluten-Free Meal Replacement Shakes for Spoonies

By | Autoimmune Disease, Chronic Pain, Natural Remedies, Nutrition | No Comments

A gluten-free meal replacement shake can be very beneficial to your health, especially if you’re a spoonie who deals with frequent nausea, loss of appetite, flare-ups, and fatigue. While no meal replacement shake can take the place of a balanced meal, these shakes are absolutely perfect for those really bad days when you just can’t eat.

 

Here are the top 4 benefits of a gluten-free meal replacement shake for spoonies:

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Exercise With Chronic Illness – Why It’s Possible (And How to Do It Right)

By | Autoimmune Disease, Chronic Pain, Featured Posts | No Comments

Important: These exercises might not be fit for all diseases, especially ME (due to post-exertional malaise). Talk with your doctor before starting any new fitness program.

 

Does the idea of exercising with a chronic illness seem impossible, maybe even ridiculous to you? You’re not alone. Exercising as a spoonie can be more than challenging. It can be frustrating, painful, and even a bit scary.

 

The good news is, there is an exercise program made just for people with chronic illness, and it’s something you’re going to want to learn more about!

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How Spoonies REALLY Feel About the Word “Cure” (And What Words Would Be Better Received Instead)

By | Autoimmune Disease, Chronic Pain, Featured Posts, Guest Posts, Mystery Symptoms | No Comments

Note: This insightful guest post was written for I Told You I Was Sick by Mary Gutierrez of www.healthyeatingexperts.com. She had asked me if she could write a guest post, and, after looking at some of her articles (which mention the word ‘cure’) I asked if she would write a post about why the word ‘cure’ might be offensive to some people with chronic illness (spoonies). She readily agreed, and this piece is above and beyond my expectations. Thank you so much, Mary!

Disclaimer: These quotes, collected and arranged by Mary Gutierrez, do not necessarily reflect the opinion of I Told You I Was Sick. They are simply posted as written by their original and respective authors, and those individuals have chosen to remain anonymous. (All photos are stock photos for the purposes of illustrating the emotion of the quotes. They are not images of the people quoted.)

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